Attitudes of Gratitude: An Analysis of 30 Cancer Narratives Published by Leading U.S. Cancer Care Centers
Commenced in January 2007
Frequency: Monthly
Edition: International
Paper Count: 33093
Attitudes of Gratitude: An Analysis of 30 Cancer Narratives Published by Leading U.S. Cancer Care Centers

Authors: Maria L. McLeod

Abstract:

This study examines the ways in which cancer patient narratives are portrayed and framed on the websites of three leading U.S. cancer care centers – The University of Texas MD Anderson Cancer Center in Houston, Memorial Sloan Kettering Cancer Center in New York, and Seattle Cancer Care Alliance. Thirty patient stories, 10 from each cancer center website blog, were analyzed using qualitative and quantitative textual analysis of unstructured data, documenting common themes and other elements of story structure and content. Patient narratives were coded using grounded theory as the basis for conducting emergent qualitative research. As part of a systematic, inductive approach to collecting and analyzing data, recurrent and unique themes were examined and compared in terms of positive and negative framing, patient agency, and institutional praise. All three of these cancer care centers are teaching hospitals, with university affiliations, that emphasize an evidence-based scientific approach to treatment that utilizes the latest research and cutting-edge techniques and technology. The featured cancer stories suggest positive outcomes based on anecdotal narratives as opposed to the science-based treatment models employed by the cancer centers. An analysis of 30 sample stories found skewed representation of the “cancer experience” that emphasizes positive outcomes while minimizing or excluding more negative realities of cancer diagnosis and treatment. The stories also deemphasize patient agency, instead focusing on deference and gratitude toward the cancer care centers, which are cast in the role of savior.  

Keywords: Cancer framing, cancer narratives, survivor stories, patient narratives.

Procedia APA BibTeX Chicago EndNote Harvard JSON MLA RIS XML ISO 690 PDF Downloads 571

References:


[1] J. Sanders and K. van Krieken, “Exploring Narrative Structure and Hero Enactment in Brand Stories,” Frontiers in Psychology, 9:1645, Sept. 2018.
[2] J. Ooms, J. Hoeks and C. Jansen “‘Hey, that could be me’: The role of similarity in narrative persuasion,” PLOS ONE 14(4): e0215359, April 2019.
[3] T. Flynn, “How Narratives Can Reduce Resistance and Change Attitudes: Insights from Behavioral Science Can Enhance Public Relations Research and Practice,” Research Journal of the Institute for Public Relations, Vol. 2, No. 2, pp. 1-25, Oct. 2015.
[4] V.A. Shaffer, E.S. Focella, A. Hathaway, L.D. Sherer, and B.J. Zikmund-Fisher, “On the Usefulness of Narratives: An Interdisciplinary Review and Theoretical Model,” Ann. Behav. Med., vol. 52, pp. 429-442, Mar. 2018.
[5] M.F. Dahlstrom, “Using narratives and storytelling to communicate science with nonexpert audiences.” Proceedings of the National Academy of Sciences of the United States of America, vol. 111 Suppl 4, pp. 13614–13620, Sept. 2014.
[6] S. Martinez-Conde, et. al., “The Storytelling Brain: How Neuroscience Stories Help Bridge the Gap between Research and Society,” Journal of Neuroscience, vol. 39, pp. 8285-8290, Oct. 2019.
[7] B. McCall, L. Shallcross, M. Wilson, C. Fuller, and A. Hayward, “Storytelling as a research tool and intervention around public health perceptions and behaviour: a protocol for a systematic narrative review,” BMJ Open, vol. 9, issue 12, Oct. 2019.
[8] “PRSA Code of Ethics,” PRSA, The Public Relations Society of America, undated. (https://www.prsa.org/about/prsa-code-of-ethics, accessed Aug. 2021).
[9] M.C. Green, “Narratives and Cancer Communication,” Journal of Communication, Vol. 56, pp. S163-S183, Aug. 2006.
[10] J. Segal, “Cancer Isn’t the Best Thing That Ever Happened to Me,” Vancouver Sun, Apr. 2010.
[11] D.J. Hauser and N. Schwarz,” “The War on Prevention II: Battle Metaphors Undermine Cancer Treatment and Prevention and Do Not Increase Vigilance,” Health Communication, vol. 35, no. 13, pp. 1698-1704, Sept. 2019.
[12] K. Mazzocco, M. Masiero, M.C. Carriero, and G. Pravettoni, “The Role of Emotions in Cancer Patients’ Decision-Making,” ecancer, vol. 13, no. 914, Mar. 2019.
[13] H.M. Derry, A.S. Epstein, W.G. Lichtenthal, and H.G. Prigerson, “Emotions in the Room: Common Emotional Reactions to Discussions of Poor Prognosis and Tools to Address Them,” Expert. Rev. Anticancer Ther., vol. 19, no. 8, pp. 689-696, Aug. 2019.
[14] B. Castillo, “How I supported my mom through eye cancer treatment,” The University of Texas MD Anderson Cancer Center, Aug. 28, 2020. Retrieved Oct. 11, 2020, from https://www.mdanderson.org/cancerwise/how-i-supported-my-mom-through-ocular-melanoma-eye-cancer-treatment.h00-159384312.html.
[15] J. Thomas, “Thyroid cancer survivor: Why I joined an immunotherapy clinical trial,” The University of Texas MD Anderson Cancer Center, Oct. 5, 2020. Retrieved Oct. 11, 2020, from https://www.mdanderson.org/cancerwise/anaplastic-and-papillary-thyroid-cancer-survivor--why-i-joined-an-immunotherapy-clinical-for-treatment-.h00-159385890.html.
[16] D. Logan, “Skull base tumor survivor: Writing music helped me cope with my pain,” The University of Texas MD Anderson Cancer Center, Sept. 18, 2020. Retrieved Oct. 10, 2020, from https://www.mdanderson.org/cancerwise/skull-base-tumor-survivor--how-writing-music-helped-me-cope-with-my-pain.h00-159385101.html.
[17] Memorial Sloan Kettering Editorial Staff, “Haley’s Story,” Memorial Sloan Kettering Cancer Center, Undated. Retrieved Oct. 8, 2020, from https://www.mskcc.org/experience/hear-from-patients/haley.
[18] SCCA Staff, “Marc Mutz, metastatic kidney cancer patient,” Seattle Cancer Care Alliance, Sept. 10, 2019. Retrieved Oct. 12, 2020, from https://www.seattlecca.org/blog/2019/09/marc-mutz-metastatic-kidney-cancer-patient.
[19] K. Calagna, “MD Anderson inspires young lung cancer patient to become a nurse,” The University of Texas MD Anderson Cancer Center, Aug. 25, 2020. Retrieved Oct. 9, 2020, from https://www.mdanderson.org/cancerwise/md-anderson-inspires-young-lung-cancer-and-targeted-therapy-clinical-trial-patient-to-become-a-nurse.h00-159384312.html.
[20] M. Begley, “After colorectal cancer, picking up where she left off: Elizabeth’s story,” Memorial Sloan Kettering Cancer Center, Undated. Retrieved Oct. 8, 2020, from https://www.mskcc.org/experience/hear-from-patients/after-colorectal-cancer-picking-where-she-left-elizabeth-s.
[21] “Cancer,” World Health Organization, Mar. 3, 2021. Retrieved Oct. 10, 2020, from https://www.who.int/news-room/fact-sheets/detail/cancer.