The Emotional Life of Patients with Chronic Diseases: A Framework for Health Promotion Strategies

Authors: Leslie Beale

Abstract:

Being a patient with a chronic disease is both a physical and emotional experience. The ability to recognize a patient’s emotional health is an important part of a health care provider’s skills. For the purposes of this paper, emotional health is viewed as the way that we feel, and the way that our feelings affect us. Understanding the patient’s emotional health leads to improved provider-patient relationships and health outcomes. For example, when a patient first hears his or her diagnosis from a provider, they might find it difficult to cope with their emotions. Struggling to cope with emotions interferes with the patient’s ability to read, understand, and act on health information and services. As a result, the patient becomes more frustrated and confused, creating barriers to accessing healthcare services. These barriers are challenging for both the patient and their healthcare providers. There are five basic emotions that are part of who we are and are always with us: fear, anger, sadness, joy, and compassion. Living with a chronic disease however can cause a patient to experience and express these emotions in new and unique ways. Within the provider-patient relationship, there needs to be an understanding that each patient experiences these five emotions and, experiences them at different times. In response to this need, the paper highlights a health promotion framework for patients with chronic disease. This framework emphasizes the emotional health of patients.

Keywords: Health promotion, emotional health, patients with chronic disease, patient-centered care.

Digital Object Identifier (DOI): doi.org/10.5281/zenodo.1132567

References:

[1] Chapman, B.K.B. (2009). Improving Communication Among Nurses, Patients, and Physicians, American Journal of Nursing, 109(11), 21–25.
[2] Chi, J., & Verghese, A. (2013). Improving Communication with Patients Learning by Doing. Jama, 310(21), 2257–2258.
[3] Finch, L. P. (2006). Patientsʼ communication with nurses: Relational communication and preferred nurse behaviors. International Journal for Human Caring. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=psyh&AN=2008–02723–003&login.asp&site=ehost-live\[email protected].
[4] OʼToole, G. (2008). Communication Core Interpersonal Skills for Health Professionals. Communication Core Interpersonal Skills for Health Professionals (pp. 138–151). Elsevier. Retrieved from https://learn2012.endeavour.edu.au/file.php/906/Readings/SOCF111_10_Reading_EthicalCommunication.pdf.
[5] American Academy on Communication in Healthcare (2011). Improving Healthcare Communications: Build the Relationship. Retrieved from 2011\nhttp://www.aachonline.org. (accessed: March, 2017).
[6] Roter, D. L., & Hall, J. A. (2006). Doctors talking with patients/patients talking with doctors: Improving communication in medical visits (2nd Ed.). Praeger Publishers/Greenwood Publishing Group. Retrieved from http://search.ebscohost.com/login.aspx?direct=true&db=psyh&AN=2006–12756–000&lang=es&site=ehost-live. (accessed: March, 2017).
[7] Joint Commission. (2010). Advancing effective communication, cultural competence, and patient- and family-centered care: A roadmap for hospitals. Oakbrook Terrace, IL: The Joint Commission.
[8] Chonchinov, H. (2007). Dignity and the essence of medicine: the A, B, C, and D of dignity conserving care. British Medical Journal, 335(7612), 184–7.
[9] Tomm, W. (1995). Bodied Mindfulness: Womenʼs Spirits, Bodies and Places. Wilfrid Laurier University Press, pp.311-318.
[10] World Health Organization. (1998). Health promotion glossary. Health Promotion International, 13, 349–364.
[11] U.S. Department of Health and Human Services, Office of Disease Prevention and Health Promotion (2015). Determinants of Health. Healthy People 2020. Retrieved from http://www.healthypeople.gov/2020/about/foundation-health-measures/Determinants-of-Health. (accessed; March, 2017).
[12] Beale, L. (2017). Human Disease and Health Promotion. Hoboken, new Jersey: John Wiley and Sons, Inc., pp. 21-22.
[13] Goodheart, C. D., & Lansing, M. H. (1997). The medical template and the threat template: The disease perspective. In Treating people with chronic disease: A psychological guide (pp. 13-80). Washington, DC, US: American Psychological Association. doi:10.1037/10221-002.