%0 Journal Article
	%A Alexander V. Libin and  Manon Schladen and  Assya Pascalev and  Nawar Shara and  Miriam Philmon and  Yuri Millo and  Joseph Verbalis
	%D 2012
	%J International Journal of Humanities and Social Sciences
	%B World Academy of Science, Engineering and Technology
	%I Open Science Index 66, 2012
	%T Health Care Ethics in Vulnerable Populations: Clinical Research through the Patient's Eyes
	%U https://publications.waset.org/pdf/7177
	%V 66
	%X Chronic conditions carry with them strong emotions
and often lead to charged relationships between patients and their
health providers and, by extension, patients and health researchers.
Persons are both autonomous and relational and a purely cognitive
model of autonomy neglects the social and relational basis of chronic
illness. Ensuring genuine informed consent in research requires a
thorough understanding of how participants perceive a study and
their reasons for participation. Surveys may not capture the
complexities of reasoning that underlies study participation.
Contradictory reasons for participation, for instance an initial claim
of altruism as rationale and a subsequent claim of personal benefit
(therapeutic misconception), affect the quality of informed consent.
Individuals apply principles through the filter of personal values and
lived experience. Authentic autonomy, and hence authentic consent
to research, occurs within the context of patients- unique life
narratives and illness experiences.
	%P 1359 - 1362